my brain is bleeding...

the title of this blog "My brain is unhinged" is very peculiar. I don't remember exactly but I seem to recall she's told me also "My skull feels like its unhinged."

Thats probably what I should of called this blog. But to me it seems like If someone's Brain came unhinged, it would be pretty freaky weird too. So the title stays.

*Other things she's told me before:

"it feels like my brain is bleeding"

she gets this feeling like there is a wetness on one side of her head. It always boggles my head. But a little searching on the internet and I read once some lady said her head felt like it was Wet or Bleeding. I still don't know what that feels like.

"its like someone stabbing me in the back of the head with an ice pick."

And when she has that pain, I can almost see it. I'll be driving us somewhere and all of a sudden out of the blue, she will jerk and her left eye will close and she will hunker over, and then its gone. sometimes it lasts for seconds, sometimes it lasts for longer. It really looks like someone is Whacking her the way she jerks. Sometimes in my mind I wonder is that some invisible Demon smacking her? It's frightening, its scary to see. And I have no idea what it feels like. I have no way of understanding it, Except I can imagine it must be insane to deal with it.
Or she will be standing there in the dining room talking to me, and WHAMMMO, she jerks, her eye closes, her face distorts, her mouth droops, she almost looks like she lost her balance, she tries to talk and its like her mouth is full of cotton... Then it subsides.

*Terms Doctors have come up with:

"Complicated Migraine Syndrome"

Thats what the doctors first told us she had. I thought it was a load of guff. I am fairly smart, I had never heard of it. My first instinct was it was something the Doctor came up with to get us to shut up. We did some searches online. And sure 'nuff, there were some sites that referenced that term.

"Hemiplegic Migraines."

Finally her Neurologist, Dr. Silver told us he thinks she has "Sporadic Hemiplegic Migraines." Migraines with major symptoms that mimic Stroke. It seems to fit... Because the Two times, that Nicky has been in the Hospital the doctors/nurses all thought she was having a Stroke.

But I still don't get it... All the medicines Doctors have prescribed, nothing seems to be a Real remedy, a Real solution.